What did you get done today?

Today is my first time spending the day with Clare in her new place. The weekend crew is different than the weekday crew and she is not familiar with them. She does not like unfamiliar things.

Clare and I sang a song together today. In reality I sang and she filled in a word here and there. We will need to work on this a bit more but she seemed to enjoy doing this with me. Clare tires quickly and she needs to rest. Her Saturday schedule went like this.

7:30 wake and get going
8:00 breakfast
9:00 transition from bed to wheelchair and prepare for
9:30 Occupational Therapy
10:15 Physical Therapy
11:30 Rest/nap
12:00 Lunch- quiet sleepy lunch. She does not eat if their are distractions
1:00 Speech Therapy
2:00 Physical Therapy
3:00 Free time/Nap, we took a stroll outside
5:15 Dinner
8:00 Prepare for sleep
9:00 Lights out

It takes a lot of work moving from one activity to the next and if she gets nausiated or needs to go the toilet it takes a lot longer. It is a busy day and very tiring for her so when she gets a few minutes between things she needs to rest. She handles visiting with one or two people OK, but she does not like a lot of talking.

During speech therapy this morning Clare pushed herself away from the computer and looked very scared and asked, "Am I getting better?" We assured her that she was getting better every day. I don't know if she completely believed us. She doesn't remember everything from day to day so every day she has to re-discover her condition and deal with it. I cant imagine what she is going through.

Kris needed to run back home to get their lama back in the yard and try to figure how he keeps getting out.