CAPTAIN AMERICA

I have had several people mention that they know the blog is filtered and that we share mostly the positive things that are happening. This is very intentional. We look for and try to see every positive thing that happens and give thanks where it is due so more good things will come. That is what keeps us going. This experience has helped our family see the good and positive things that are all around us. We feel very blessed and having this positive attitude I believe has helped us increase our faith. Faith is a healing power and it is shared by people of all faiths. It would have been so easy to document all of the negative things . On any given day I could have made a list of 100 things that Clare or Kris could not do or things that are not working properly. Dwelling on things that are going wrong, and especially documenting negative things destroys faith. This is what I believe.


We have tried to put just enough reality into the blog so that people know where we are. Clare still has a long way to go. I re-read all of the entries and comments from the start of this blog today and it surprised me how far we have come. I have become so focused on today and where we are and need to go that I really forgot where we had been. I can tell you exactly how Clare’s therapy went last time I was with her or how she ate or how her cognitive functions are working. I have a clear understanding of exactly where we are today. I guess that the past is something that I do not want to think about right now. It still hurts.


We have chosen not to post pictures unless they are happy pictures that Clare would approve of. Yesterday for occupational therapy, they took Clare and Kris out to the movies! They saw Captain America in a movie theatre and Clare handled it pretty well. (Kris did too but we all knew he could handle it.) Here is a picture from their outing.

Clare still improves daily and we hope she can stay in this inpatient rehab center until she can walk on her own. We are probably within a couple of weeks of moving again. Clare has made so much progress with a structured therapy schedule 6 days a week. I do not want her to backslide and lose any ground because she does not qualify for a high level of care anymore. Our society seems to have a way of helping those that are in the bottom 5% to get them up to 6% so they can wash their hands of the problem. We saw this with our twins when they needed speech therapy. When they tested below the 5 percentile there were programs to help them. When they progressed into the bottom 10 percentile then they would not help them anymore. This was just when they needed it the most to keep their progress going. I fear this is going to happen to Clare. She has come so far and now that she will be allowed to stand and attempt to take a step, she may no longer qualify for inpatient therapy.

To end on a positive thought, Bethany handed Clare her guitar this week and Clare strummed a C cord. You can see it in the picture below. Everyday there is something really miraculous going on. It is so much fun to witness it.