Clare continues to make progress every day and we continue to learn as we go how things really work, mostly after the fact. As of today this is the status of what is going on.
Clare needs to pass three swallow tests with a blue die before they will remove the tube that goes down her throat. They put blue Kool-Aid powder on her tongue and small ice chips in her mouth. They deflate the cuff holding the tube in her wind pipe, then as she swallows her very blue saliva, they check her lungs for any blue coloring by suctioning through her trachea. No blue color means she is swalling properly. Today she passed her 1st test. Monday they will do it again and possibly another test on Tuesday. She is really breathing very well on her own and we hope and expect her to earn her "speaking" valve early next week.
Clare's appearance is very thoughtful as she lays there quietly watching things in the room. She still likes to move her left leg and arm. She enjoys rubbing her spiky hair. Physical therapy took her outside yesterday and today and she liked that. Kris was with her and he said she relaxed and fell asleep out in the fresh air. I see such progress every time I visit.
We appreciate Millard County for adopting our kids and making them one of their own. We continue to learn of community support that really humbles us. We hope we can someday meet the friends and employers that have rallied the community to care for our children. This past week there was a fund raiser for Kris and Clare and we understand that many families in Millard County will be eating pizza for the foreseeable future. It is impressive to us that this level of concern exists for people that have only lived in that community a few short months. It's no wonder why Kris and Clare love living in their "new" home so much. We hope they can be back there soon.
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