We have learned from experience that this is a very slow process. No one just “wakes up” all at once.
Like Clare, they may do one “trick” a day and progressively build up their
skills (ie: moving a body part, opening their eyes, yawning, etc). Some people progress slower and some faster. We’ve been told that each brain injury has its own personality, and there is no
predicting when or what will happen.
These past few days have been encouraging as Clare has been
opening her eyes, and with everyone’s excitement there have been many people
who have thought she is now awake. She’s not what we would call “awake,”
so to clarify I decided to explain how consciousness is measured.
The Glascow Coma Scale (GCS) measures consciousness. It has
3 sections which are each scored then added together to get a GCS number. Here is the scale:
GCS ≤ 8 are
considered to be in a coma, or have severe brain injury
GCS 9 – 12 have moderate brain injury
GCS ≥ 13 have no brain injury or mild (Most of us have
a GCS of 15)
Clare’s score today:
Eyes: Spontaneously opening (4)
Verbal: None (1) (everyone with a tracheostomy is given a 1)
Motor: Flexion to pain (3)
Total GCS: 8
Verbal: None (1) (everyone with a tracheostomy is given a 1)
Motor: Flexion to pain (3)
Total GCS: 8
When Clare came in to the ER originally, she was a 3. Until
she started spontaneously opening her eyes this past weekend, she has been
anywhere from 4-6. So while we are ecstatic about her progress, she still has a
ways to go.
Right now Clare is back at Utah Valley Hospital getting another CT Scan. Once a doctor reads it and clears her, she'll be transferred back to the LTAC she is staying in. I think I'm starting to get this routine down...

Thanks for the update, Bethany. I will email Tom/his wife to see if I can be of help. I will be somewhat nearby in Zion and can be there Saturday, October 1 starting in the middle of the day. If you/your parents think I can be of help, I would love to help. I can sit with Clare, read to her, or whatever is best for her at the time. I will continue to have Clare, Kris, you and your entire family in my thoughts and prayers.
ReplyDeleteThanks for the information! I have been what it all means with her coma.
ReplyDeleteMelissa (Mabey) Nichols